The vast majority (95 percent) of this group still feels moderate to bad three months to a year after the first complaints. Fatigue (93 percent), loss of concentration (70 percent) and shortness of breath (66 percent) * are the most common symptoms. This is evident from a poll among 1864 people with long-term complaints after corona who have reported to Longfonds. “The impact of corona on the daily life of this group of people is enormous. What is ‘long-term’? We do not know. Long Covid is gradually showing signs of a new chronic disease ”, says director Michael Rutgers of Longfonds.
Hardly any difference in the first and second wave respondents’ complaints
Only a quarter (24 percent) of the respondents indicate that the work situation has not changed due to corona. There is hardly any difference between people in the first and the second wave. Four in ten people are concerned that they will one day be able to return to full work. “We know that a large proportion of people who become infected recover from corona. Unfortunately, we also see that there is a group with long-term complaints. The impact of corona on this group is significant. On themselves, but also on society ”, says Michael Rutgers. “This poll is an indication of what is going on among at least tens of thousands of people with Long Covid.”
For the poll, an online questionnaire was distributed between 24 March and 5 April via coronalongplein.nl (now coronaplein.nu), the digital patient platform for people with long-term complaints after corona. Longfonds works closely with the Facebook group ‘Corona experiences and long-term complaints’, which now has more than 20,000 members. The corona patients who gathered here were also able to fill in the questions. It is therefore a poll among people who have registered themselves. A total of 1,864 people completed the questionnaire. The analysis distinguishes between people from the first wave (March to August 2020) and people from the second wave (September 2020 to January 2021). This poll is not representative of all people who have had corona.
A large majority (65 percent) of respondents say they have moderate to severe problems with daily activities, such as household chores. Nine percent are not even capable of it. Nearly 7 in 10 (67 percent) of people in this group experience moderate to severe pain from corona. There is hardly any difference between people who received corona in the first wave and in the second wave. “You can safely call that striking,” says Michael Rutgers. “Of course you hope that this group of people will have fewer complaints over time. Especially the people who have been sick for a year. This poll shows that this is unfortunately not the case for a large part of these 1,864 people. That is an indication of the long-term character of Long Covid. ”
Not yet sufficiently heard and recognized
Almost half (45 percent) of the group does not feel heard and recognized about their illness. More than 3 in 10 respondents indicate that they have not had aftercare, even though they say it is necessary. “We are seeing that healthcare is slowly getting better and that understanding is starting to emerge for this group. But we are not there yet. This is still a partially invisible group of patients. I really think that as a society we should say even more clearly: recognize that we do not yet know how long the recovery will take. And in the meantime, make sure these people are helped. Recognition and recognition, that’s what it’s all about, ”says Rutgers.
Dissatisfied with aftercare
Almost half (47 percent) of the people who participated in the poll say they are dissatisfied to very dissatisfied with the follow-up care they have received. They do not feel that their complaints are taken seriously or they indicate that they have not received follow-up care. “The causes and long-term consequences of COVID-19 are still far from known. That is why we must continue to listen to this group of people. So that they can receive the right care, treatment and guidance, ”says Michael Rutgers.
Poll among group with Long Covid: three quarters not yet fully employed
Source link Poll among group with Long Covid: three quarters not yet fully employed